WHY WE FIGHT
TO CREATE A WORLD
WHERE NF NO LONGER EXISTS
CNFWJ is committed to accelerating medical research, driving community action, and raising funds to end NF. With Jack’s help, CNFWJ has encouraged thousands of people previously unfamiliar with NF to learn, donate and spread awareness about NF so that the vision of a cure can be realized. CNFWJ holds multiple events and golf tournaments throughout the year, raising over a million dollars on its own behalf as well as other NF-related entities (including the Children’s Tumor Foundation and Cupid’s Undies Run).
IN THE NEWS
Accelerating Medical Research
Raising Funds to End NF
Driving Community Action
Ground-breaking news! CNFWJ’s first distribution of funds as an organization went to furthering the administration of clinical trials for what is now the first FDA-approved drug that specifically targets NF tumors. Koselugo (selumetinib) – has shown to reduce NF tumor size (20%-60%) in over 70% of pediatric patients in clinical trials. This is monumental in our world. While this is no cure or long-term, stand-alone treatment, it is cause for celebration as we forge a new chapter in the fight against NF.
Through our numerous events and fundraisers, CNFWJ has raised almost $3 million for NF research on its own behalf and on behalf of other NF-related entities. But we aren’t stopping there. We won’t stop until a cure has been found and we put an end to NF forever.
Behind the CNFWJ Board is a broad, multi-state team of volunteers that contribute their time, treasure and talent in the fight against NF. In a short period of time, a community of committed people has developed through CNFWJ – and each year the number and the commitment grows.
WE NEED YOU
Central to CNFWJ’s goals is the involvement of and support from individuals who are not affected by NF. Your time, talent or treasure can have a profound effect on the many that suffer from this disorder. Through community interest, we can help change the face of this disorder.
YOUR TIME
YOUR TALENT
YOUR TREASURE
JACK BURKE
2020 HUMANITARIAN OF THE YEAR
JACK BURKE + ADP
ADP Meeting of the Minds Studio sits down with Jack to talk about NF, overcoming challenges, and the importance of inclusion and neurodiversity.
JACK BURKE - GLOBAL HERO
Global Heroes Magazine - features Jack, Lilly Ann and all the progress we are making in research to find a cure for NF.
FUND-A-CURE TO #ENDNF
Dear Friends,
We have seen incredible generosity today! We are on our way to raise $50,000 by the end of the year. If you have not had the opportunity to give, now is the time. If you have already given, please share our cause with friends and family. With our matching gift of $10,000, you can double your impact!
Over the years, your generosity has been the driving force behind our success, and we know we can count on you again.
Your support will directly contribute to Fund-A-Cure to #endNF.
