NF is a genetic disorder causing tumors to grow on nerves anywhere in the body, including the brain and spinal cord. It can lead to blindness, deafness, chronic pain, disfigurement, learning disabilities, bone defects, cardiovascular problems, cancer, and a wide range of other complications.

NF is one of the most common neurogenetic diseases, affecting 1 in every 3,000 births, yet it is still widely unknown. More prevalent cystic fibrosis, inherited muscular dystrophy, Huntington’s disease, and Tay Sachs COMBINED, NF affects people of all ethnicities. Fifty percent of all cases arise in families with no history of the disorder. Anyone’s next child could be born with NF.

1:3000 people are born with NF.

Currently, there is no cure or effective treatment for NF.